Hi I’m Tiffani,
My journey with Celiac Disease began in 2014 after eight long months of tests, appointments, and misdiagnoses. It felt like a revolving door: if my pain was “above the belt,” I’d see my primary care doctor; if it was “below the belt,” I was sent to my gynecologist. Years later, I discovered that gluten wasn’t my only trigger—I also have lactose intolerance, a corn allergy, and some sugar sensitivities.
While the stomach pain was tough, my most debilitating symptoms were brain fog and crushing fatigue. At my worst, I could barely get out of bed. I felt like Drew Barrymore’s character in 50 First Dates, needing a video reminder every morning just to remember my responsibilities.
Adjusting to life with Celiac Disease wasn’t easy. For years, I felt defined by my diagnosis. I dreaded being seen as the “picky eater” or, as some called me, a “bird eater.” Social events were particularly challenging—I’d attend dinners where the host, forgetting about my condition, would offer cucumbers as the only option I could eat. It often felt like I was being invited, but only if I could leave my disease at the door.
Nearly a decade later, I’ve come to see those uncomfortable moments as lessons in resilience. They’ve shaped the kind of host—and advocate—I strive to be. Today, I take pride in creating inclusive meals that accommodate allergies, intolerances, and food-related conditions. There’s something incredibly empowering about making everyone feel safe and welcome at the table, rather than questioning whether vegetables are gluten-free.
My healthcare background also helped me advocate for myself along the way. I deepened my ability to interpret lab results and understand what they meant for my health. Interestingly, I was my doctor’s first Celiac patient. His advice was to pick up a copy of How Can It Be Gluten-Free and schedule a dietitian appointment. That was the start of my journey into exploring ingredients outside my comfort zone.
Today, I channel my passion into baking—especially cakes. I’ve even donated my creations to fundraising competitions and won first place (as the only gluten-free entry!). These small victories have been incredibly rewarding.
Looking back, I’m grateful for the challenges that brought me here. Celiac Disease has taught me empathy, adaptability, and the importance of self-advocacy. My hope is that by sharing my story, others feel less alone and more empowered in their own journeys. I am excited to be part of Beyond Celiac and look forward to the adventures ahead!
